September 10, 2008 Surgery

Ok so Devin went to surgery yesterday morning about 8am. They had a lot of prepping and stuff to do like his bone marrow aspirates and placing an epideral catheter for pain management. So they didn't actually begin the surgery and make the first incision until around 10am. They were antisipating a 12 hour surgery. Well only 4 hours later around 2 30 they called to tell me they were closing up, they got the tumor out!!!!!!!!!!!!

So he was being moved to recovery while my mom and I talked to the the surgeon. He told us the tumor practically wanted to come out lol. They removed he right adrenal gland, but thankfully were able to save the kidney. So before the surgery they told me he would be on a ventilator (a tube down his throat that breaths for him) for about 24 hours until he can start breathing on his own. Well not een an hour after surgery still in the recovery room, Devin was fighting the tube down his throat so they took it out! The nurses in the ICU call him the Neuroblastoma Rockstar, that they've never seen a kid with his diagnosis after 5 rounds of chemo and surgery look that good. Plus NOT be on a vent. So all is very well we are being transfered back from the ICU to Sloan Kettering today ( was supposed to be in 3 days DEVIN ROCKS) Still no sure when we are going home but at least my lil man made it through surgery and is doing well. Thank God and thank you to every one that prayed for my lil guy!
We took a grand tour of Manhatten before surgery Devin LOVED it... shoot I loved it. We went to china town, little italy we rode the subway, it was awesome. I want to move here lol, if only it wasn't so expensive!!!

I have like 500000000000000 pictures to upload so I will do that later tonight or tomorrow!!!!
Talk to you all soon!!!
Missy and Devin!!!

September 04, 2008

Devin @ 5am going in for his stem cell harvest! That smile is what keeps me going!

Hey everyone!

So things have been pretty good with devin right now. He's been feeling ok and no hospitalizations lately which is always a great thing lol!



Surgery is FINALLY booked for the 10th of Sept which is this Wednesday. We are leaving for NY on Monday. Looking at whats going on I can't believe that its already time for surgery. He's already had 5 rounds of chemo. I looked at my counter today and Devin has been diagnosed with cancer for 119 days. Wow I can't believe it. Everyday seems to crawl by but now looking at how far we already are is crazy. In one way I am scared shitless of the surgery.. it makes my stomach turn just thinking about it. But on the other hand it is one more step towards this being over. BUT all at the same time, I'm keep thinking its almost over after the surgery, but its not. Not even close. we still have months of chemo bone marrow transplant and only god knows that else. I am a person who likes to know the who what when wheres of things and that what sucks about this is there is no definite answers. Devin could have cancer for weeks months YEARS!! Uhh I guess I am just OVER all this, this week. I'll have a different look on it next week lol.. as crazy as it sounds.

Well I don't know what the computer situation in NY will be so I don't know if I will be able to update until I get back but I wil try.



Again I ask for everyone's prayers now more than ever. Please pray for a successful surgery and a speedy recovery!!!!!!!



Thank you

Melissa and Devin